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- Co-designing a Care Plan Guide App to Support Early Conversations About End-of-Life Care in DementiaPublication . Neves, S.; Macdonald, A.; McLellan, E.; Poole, M.; Harrison-Dening, K.; Tucker, S.; Bamford, C.; Robinson, L.Talking about death and end-of-life care (EoLC) can be a sensitive topic for people affected by dementia and their families. However, recent research [1] has identified the need for people living with dementia (PLwD) to start planning timely discussions about their future care to help their family and professional carers to confidently make decisions on their behalf when they are no longer able to do so themselves [2]. This paper describes a five-stage iterative co-design approach aimed at understanding the type and nature of these sensitive discussions and developing a resource to support PLwD, their families and carers. The resource took the form of a Care Plan Guide app, as a tool to help initiate early discussions about anticipatory care planning [3] in dementia for PLwD to ensure good personalized care and that important wishes were honoured. The paper highlights the importance of the involvement and active collaboration of families living with the illness. It discusses lessons learned, reflections and recommendations for approaching co-designing healthcare digital resources for sensitive EoLC issues that may have wider applications than for PLwD.
- Translations 2.2013Publication . dos Santos, JoãoTranslations 2.2013 is a digital device for the presentation of drawings, based on the interpretation and translation of others' drawings data. On this work it is proposed the experience of the perception of the duration of the act of drawing, as well as of other representations for its data, as a way to place the observer on the position of interpreter and creator of a mental copy of the drawing. The drawings being displayed have been previously produced using another device's module, constituted by a digital drawing machine and a person to make the drawing, that will record, on a text file, the data corresponding to every pixel's position and its quantity. Translations 2.2013 is a device that interprets and transforms these data in a copy drawing of its original and in graphs of the relation of each pixel's position and the duration of the drawing process. This drawing presentation has the duration of one day, happening pixel-by-pixel, in order to accentuate the act of drawing as a performative act inscribed in a duration. By turning the revelation of the drawing in an extremely slow process it becomes relevant the observer's perception as a subjective and creative action.