ESSLei - Mestrado em Cuidados Paliativos
Permanent URI for this collection
Browse
Browsing ESSLei - Mestrado em Cuidados Paliativos by advisor "Laranjeira, Carlos António Sampaio de Jesus"
Now showing 1 - 4 of 4
Results Per Page
Sort Options
- Family Experiences of Loss and Bereavement in Palliative Care Units during the COVID-19 Pandemic: An InterpretativePhenomenological StudyPublication . Mateus, Maria João Marques; Laranjeira, Carlos António Sampaio de JesusThe COVID-19 pandemic significantly interrupted the grieving experiences of bereaved families and drastically changed their ways of dealing with loss. Our study aims to gain an indepth understanding of the lived experience of bereaved relatives of patients who died in palliative care units during the COVID-19 pandemic. The phenomenological research design included sixteen family members of hospitalized palliative patients who died from November 2021 to June 2022. The study involved conducting qualitative in-depth semi-structured interviews with family members 12–24 months after the death of their loved ones. The interviews aimed to gather information about the experiences of the families both before and after the death. The COREQ guidelines were applied in the study. Participants were mainly female (n = 13) with a mean age of 47.25 (SD = 12.58). Data were analysed using the Interpretative Phenomenology Analysis (IPA). The following three categories were identified: (1) navigating loved ones’ final weeks and days (troubled deaths); (2) the last farewell was robbed; (3) looking for adjustment after loss. One overall main theme emerged, which was as follows: “Struggling between stolen moments and painful losses to get back into the flow of life”. This study provides novel insights into end-of-life care and bereavement from the perspectives of family. Our findings suggest that developing and promoting family-centered culture can lead to compassionate palliative care focused on a myriad ways of affirming that their loved one matters.
- O LEGADO NOS CUIDADOS EM FIM DE VIDA: UMA ANÁLISE DE CONCEITOPublication . Timóteo, Carolina Mendes; Laranjeira, Carlos António Sampaio de JesusEste relatório surge no âmbito do Mestrado em Cuidados Paliativos, da Escola Superior de Saúde de Leiria, do Instituto Politécnico de Leiria, e com ele pretende-se evidenciar o desenvolvimento e consolidação de competências enquanto mestre em Cuidados Paliativos (CP). Atualmente, os CP são uma peça fundamental nos cuidados de saúde, respondendo assim às necessidades dos doentes com doenças graves, progressivas e incuráveis, proporcionando qualidade de vida, conforto e dignidade nesta fase de vida. Na primeira parte é realizada uma apresentação e caracterização dos locais onde foram desenvolvidos os ensinos clínicos (EC), designadamente em internamento hospitalar, equipa comunitária e equipa intra-hospitalar de suporte em CP. Na segunda parte é apresentada uma reflexão crítica acerca das competências técnicas, científicas, relacionais e humanas assentes no core de competências proposto pela European Association for Palliative Care (EAPC), com o objetivo de avaliar, diagnosticar e intervir na pessoa doente e respetiva família, de forma holística e tendo em vista uma prática baseada na evidência cientifica. Na terceira parte, explana-se o estudo secundário conduzido sob o tema: “O Legado em Cuidados de Fim de Vida: uma análise de conceito”. De acordo com os achados obtidos, o legado serve como um elemento unificador que liga o passado, o presente e o futuro, proporcionando um sentido de propósito na vida. Implica a ideia de ter uma vida testemunhada por outros, seja ela planeada ou fortuita. O objetivo é gerar memórias ou símbolos/objetos, especificamente, elaborados para suscitar memórias que servirão como um encontro favorável no presente e suscitarão emoções positivas quando recordadas no futuro. A singularidade de cada legado enfatiza a necessidade de uma abordagem de cuidados centrada na pessoa, que seja capaz de respeitar a dignidade humana, apoiar a relacionalidade e resolver questões existenciais em fim de vida. Assim, crê-se que a elaboração desta análise conceptual, possa contribuir para incrementar a prática, formação e investigação na promoção do legado em cuidados paliativos.
- Spiritual Care through the Lens of Portuguese Palliative Care Professionals: A Qualitative Thematic AnalysisPublication . Matos, Juliana Silva; Laranjeira, Carlos António Sampaio de JesusProfessionals in palliative care (PC) are often challenged by the suffering of the people they care for, throughout the latter stages of life. Spiritual care requires understanding the suffering and experiences of the sick person, recognizing their resources and their spiritual needs. Providing spiritual care is paramount to person-centered care. Despite the increase in data and its recognized importance in palliative care, spiritual care continues to be the least advanced and most overlooked aspect. This study aims to explore the perceptions and experiences of spiritual care from the perspective of PC professionals and identify their strategies to address spiritual care issues. To respond to these objectives, a qualitative, descriptive, and exploratory study was designed, in which fifteen PC professionals participated. Data were collected between September and October 2023, through semi-structured personal interviews and managed using the WebQDA software (University of Aveiro, Aveiro, Portugal). All data were analyzed using thematic content analysis. The study included 15 palliative care professionals with an average age of 38.51±5.71 years, with the majority being female (93.3%). Regarding the professional category, the majority of participants were nurses (n=9), with an average of 13.6 years of professional experience and 3.3 years working in palliative care. Most of the participants identified themselves as having no specific training in spiritual care. Thematic analysis spawned three main themes: (1) spiritual care as key to palliative care, (2) floating between “shadows” and “light” in providing spiritual care, and (3) strategies for competent and spiritual-centered care. Three sub-themes were identified under the first theme: "We are all spiritual beings" - an ontological condition; spiritual awakening at the end of life; and relational spirituality. In the second theme, two subthemes were identified: barriers and facilitators of spiritual care. Finally, in the third theme, we found three sub-themes: assessment centred on the spiritual needs of the sick person; effective spiritual accompaniment; and developing self-knowledge and interpersonal relationships in the work environments. Spiritual care was considered challenging by its very nature and given the individual, relational, and organizational constraints lived by professionals working in palliative care. With support from healthcare institutions, spiritual care can and should become a defining feature of the type, nature, and quality of palliative care provision. Care providers should be sensitive to spiritual needs and highly skilled and capable of an inthe- moment approach to respond to these needs. Further research on educating and training in spiritual care competence is a priority.
- Spiritual Care[Givers] Competence in Palliative Care: A Scoping ReviewPublication . Costeira, Cristina Raquel Batista; Laranjeira, Carlos António Sampaio de Jesus; Querido, Ana Isabel FernandesTo deliver spiritual care, professionals must be skilled in physical, mental, social, and spiritual care. Spiritual care competence includes knowledge, behaviors, attitudes, and skills that enable successful or efficient care. This review aims to identify the scope of competence and the specific skills, knowledge, and attitudes used in providing spiritual care to people needing palliative care, and the main challenges and facilitators. A scoping review was developed using the Joanna Briggs Institute methodology. Six databases (Web of Science; MEDLINE/Pubmed; Scopus; CINAHL; MedicLatina and SciELO) were searched in September 2023, with an update in January 2024. The resulting 30 articles were analysed using a content analysis approach. Information was categorized into three domains: cognitive, affective, and functional (based on three personal resources: intrapersonal, interpersonal, and transpersonal). Palliative care professionals face a lack of training and insufficient preparation to deliver spiritual care. Spiritual care competence depends on professional spiritual development and experience, spiritual intelligence (cognitive), spiritual humility (affective), and having a critical and reflexive mind (functional). In the future, palliative care should seek to improve competent spiritual care. This review could help clarify the real configuration of competent spiritual care and lead to improvements in a professional’s empowerment when delivering effective spiritual care to patients and families.