Building Bridges for “Palliative Care-in-Place”: Development of a mHealth Intervention for Informal Home Care

Laranjeira, Carlos; Dixe, Maria dos Anjos; Martinho, Ricardo; Rijo, Rui; Querido, Ana

http://hdl.handle.net/10400.8/8568

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Authors

Laranjeira, Carlos

Dixe, Maria dos Anjos

Martinho, Ricardo

Rijo, Rui

Querido, Ana

Abstract(s)

In Palliative Care (PC), family and close people are an essential part of provision of care. They assume highly complex tasks for which they are not prepared, with considerable physical, psychological, social and economic impact. Informal Caregivers (ICs) often falter in the final stage of life and develop distress, enhancing emotional burden and complicated grief. The lack of available and accessible in-person counselling resources is often reported by ICs. Online resources can promote early access to help and support for patient-IC dyads in palliative care. The primary aim of this research is to co-design, develop and test the feasibility of the Help2Care-PAL mHealth app that addresses the needs of ICs of palliative patients cared for at home. This Digital Health Intervention (DHI) in palliative care will be used for education, symptom management, communication and decision-making, to enhance Quality of Life (QoL) of patients and ICs, fostering anticipatory grief and the reach and efficiency of services.

Description

Funding: The study has received funding under the project Help2Care-PAL: Support the caregiver in palliative care, funded by Fundação “LaCaixa”. This work is also funded by national funds through FCT—Fundação para a Ciência e a Tecnologia, IP (UIDB/05704/2020 and UIDP/05704/2020) and under the Scientific Employment Stimulus—Institutional Call—[CEECINST/00051/2018].

Keywords

Selfcare Chronic disease mHealth Technology Palliative care Caregivers Communication

URI

http://hdl.handle.net/10400.8/8568

Citation

Laranjeira C, Dixe MA, Martinho R, Rijo R, Querido A. Building Bridges for "Palliative Care-in-Place": Development of a mHealth Intervention for Informal Home Care. Front Psychol. 2022 Mar 25;13:862347. doi: 10.3389/fpsyg.2022.862347.