Browsing by Author "Demeyer, Heleen"
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- Cultural adaptation and validation of the Brazilian Portuguese version of the PROactive Physical Activity in COPD–clinical visit instrument for individuals with COPDPublication . Santana, André Vinicius; Fontana, Andrea Daiane; Almeida, Rafaela Cristina de; Mantoani, Leandro Cruz; Camillo, Carlos Augusto; Furlanetto, Karina Couto; Rodrigues, Fátima; Cruz, Joana; Marques, Alda; Jácome, Cristina; Demeyer, Heleen; Dobbels, Fabienne; Garcia-Aymerich, Judith; Troosters, Thierry; Hernandes, Nidia Aparecida; Pitta, FabioObjective: To adapt the PROactive Physical Activity in COPD-clinical visit (C-PPAC) instrument to the cultural setting in Brazil and to determine the criterion validity, test-retest reliability agreement, and internal consistency of this version. Methods: A protocol for cultural adaptation and validation was provided by the authors of the original instrument and, together with another guideline, was applied in a Portuguese-language version developed by a partner research group from Portugal. The adapted Brazilian Portuguese version was then cross-sectionally administered twice within a seven-day interval to 30 individuals with COPD (57% were men; mean age was 69 ± 6 years; and mean FEV1 was 53 ± 18% of predicted) to evaluate internal consistency and test-retest reliability. Participants also completed the International Physical Activity Questionnaire (IPAQ), the modified Medical Research Council scale, the COPD Assessment Test, and Saint George's Respiratory Questionnaire to evaluate criterion validity. Results: The C-PPAC instrument showed good internal consistency and excellent test-retest reliability: "amount" domain = 0.87 (95% CI, 0.73-0.94) and "difficulty" domain = 0.90 (95% CI, 0.76-0.96). Bland & Altman plots, together with high Lin's concordance correlation coefficients, reinforced that agreement. Criterion validity showed moderate-to-strong correlations of the C-PPAC with all of the other instruments evaluated, especially with the IPAQ (rho = -0.63). Conclusions: The Brazilian Portuguese version of the C-PPAC is a reliable and valid instrument for evaluating the experience of Brazilian individuals with COPD with their physical activity in daily life.
- ERS International Congress 2023: Highlights from the Allied Respiratory Professionals assemblyPublication . Jacinto, Tiago; Smith, Elizabeth; Diciolla, Nicola S.; van Herck, Maarten; Silva, Liliana; Santiago, Maria Granados; Volpato, Eleonora; Grønhaug, Louise Muxoll; Verkleij, Marieke; Peters, Jeannette B.; Sylvester, Karl; Inal-Ince, Deniz; Padilha, José Miguel; Langer, Daniel; Demeyer, Heleen; Cruz, JoanaThis paper summarises some of the outstanding sessions that were (co)organised by the Allied Respiratory Professionals Assembly during the 2023 European Respiratory Society (ERS) International Congress. Two sessions from each Assembly group are outlined in the present paper, covering the following topics: Group 9.1 focuses on respiratory physiology techniques, specifically on predicted values and reference equations, device development and novel applications of cardiopulmonary exercise tests; Group 9.2 presents an overview of the talks given at the mini-symposium on exercise training, physical activity and self-management at home and outlines some of the best abstracts in respiratory physiotherapy; Group 9.3 highlights the nursing role in global respiratory health and presents nursing interventions and outcomes; and Group 9.4 provides an overview of the best abstracts and recent advances in behavioural science and health psychology. This Highlights paper provides valuable insight into the latest scientific data and emerging areas affecting the clinical practice of Allied Respiratory Professionals.
- ERS International Congress 2023: highlights from the Allied Respiratory Professionals AssemblyPublication . Jacinto, Tiago; Smith, Elizabeth; Diciolla, Nicola S.; van Herck, Maarten; Silva, Liliana; Granados Santiago, Maria; Volpato, Eleonora; Grønhaug, Louise Muxoll; Verkleij, Marieke; Peters, Jeannette B.; Sylvester, Karl; Inal-Ince, Deniz; Padilha, José Miguel; Langer, Daniel; Demeyer, Heleen; Cruz, JoanaThis article summarises some of the outstanding sessions that were (co)organised by the Allied Respiratory Professionals Assembly during the 2023 European Respiratory Society International Congress. Two sessions from each Assembly group are outlined, covering the following topics: Group 9.01 focuses on respiratory physiology techniques, specifically on predicted values and reference equations, device development and novel applications of cardiopulmonary exercise tests; Group 9.02 presents an overview of the talks given at the mini-symposium on exercise training, physical activity and self-management at home and outlines some of the best abstracts in respiratory physiotherapy; Group 9.03 highlights the nursing role in global respiratory health and presents nursing interventions and outcomes; and Group 9.04 provides an overview of the best abstracts and recent advances in behavioural science and health psychology. This Highlights article provides valuable insight into the latest scientific data and emerging areas affecting the clinical practice of Allied Respiratory Professionals.
- Role of digital health in pulmonary rehabilitation and beyond – shaping the futurePublication . Pimenta, Sara; Hansen, Henrik; Demeyer, Heleen; Slevin, Patrick; Cruz, JoanaPulmonary rehabilitation (PR) is a cost-effective intervention with well-known benefits on exercise capacity, symptoms and quality of life in patients with chronic respiratory diseases. Despite the compelling evidence of its benefits, PR implementation is still suboptimal, and maintenance of PR benefits is challenging. To overcome these pitfalls, there has been a growing interest to develop novel models for PR delivery. Digital health is a promising solution, as it has the potential to address some of the most reported barriers to PR uptake and adherence (such as accessibility issues), help maintain the positive results following a PR programme, and/or promote patients’ adherence to a more active lifestyle through physical activity (tele-)coaching. Despite the accelerated use of digital health to deliver PR during the COVID-19 pandemic, there are still several factors that contribute to the resistance in the adoption of digital health, such as the lack of evidence on its effectiveness, low acceptability by patients and healthcare professionals, concerns about implementation and maintenance costs, inequalities in access to the internet and technological devices, and data protection issues. Nevertheless, the trend towards reducing technology costs and the higher availability of digital devices, as well as the greater ease and simplicity of use of devices, enhance the opportunities for future development of digitally enabled PR interventions. This narrative review aimed to examine the current evidence on the role of digital health in the context of PR, including strengths and weaknesses, and to determine possible threats and opportunities, as well as areas for future work.
- The more stars, the brighter! Interview with the ECM award winner 2023Publication . Rathnayake, Senani N.H.; Cruz, Joana; Cuevas Ocaña, Sara; Lehmann, Mareike; Demeyer, HeleenCongratulations on receiving the ERS ECM award! Would you like to share what sparked your interest in respiratory research, and specifically ageing, and how it has evolved over the years? You are interested in endophenotyping COPD and IPF patients to identify treatable traits. How do your research findings translate into clinical practice to improve management and quality of life in chronic respiratory diseases? Are there any promising therapies or interventions from your research that you believe will significantly improve patient care? How can international societies, such as the ERS, promote the implementation of these personalised therapies? You hold multiple roles, as a Professor and a research group leader, among others. How do you manage your time effectively and maintain a healthy work–life balance? How important has mentorship or collaboration been in your career? Can you share any experiences where collaboration or mentorship significantly impacted your professional development? You have moved places a lot over the years, were these moves choices or needs? Do you think you would have achieved a similar profile without them? What piece of advice would you give to yourself if you could talk to yourself 5 years ago and what advice would you give to ECMs at the start of their career? You have been nominated for the ECM award by a colleague. What significance does winning this award hold for you and has it influenced your research path in any way? During your Mina Gaga lecture at the ERS Congress you also inspired many ECMs with the quote “the more stars the brighter”. Can you explain what this means for you?