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Cohort Study Good Practices: Design Communication and Capacitation Processes

datacite.subject.fosHumanidades::Artes
datacite.subject.sdg03:Saúde de Qualidade
datacite.subject.sdg12:Produção e Consumo Sustentáveis
datacite.subject.sdg13:Ação Climática
dc.contributor.authorFerreira, Elga
dc.contributor.authorPenedos-Santiago, Eliana
dc.contributor.authorNetto-Rocha, Constança
dc.contributor.authorFaria-Marques, Daniela
dc.contributor.authorSantos, Estêvão Soares
dc.contributor.authorDias, Sara Simões
dc.date.accessioned2026-07-20T15:26:55Z
dc.date.available2026-07-20T15:26:55Z
dc.date.issued2022
dc.description.abstractIn the county of Leiria, Portugal, part of the population is known to have morbidity diagnoses (metabolic illnesses and more) and poor health habits on a big enough scale to bring the idea of how low health literacy can affect people’s lives and health services, such as a flood of the emergency systems caused by people attending the emergency room with minor issues. To address it, institutions in Leiria such as the City Hall, ACES Pinhal Litoral (Regional Primary Care Unit Headquarters) and Polytechnic of Leiria decided to conduct a longitudinal and prospective cohort study, where a sample of the population will be followed throughout time to understand if their choices regarding health and sustainable habits are indeed affected by their health literacy levels. This project will contribute to the initial stage of this cohort study, by developing a recognizable brand, whose identity can be maintained throughout all its communication and dissemination media, so that the population can identify, without equivocation, the cohort study to which it refers, and awaken their curiosity to participate. This stage also includes the presentation and dissemination of the cohort study itself to the population under study, followed by a randomized inquiry done by pre-selected interviewers. This project relies on Service Design and Participatory Design methodologies to streamline the development of the study’s elements and to solve common cohort issues, such as: 1) gathering a suitable number of participants that can represent the population; 2) follow-up maintenance of participants; 3) keeping the interviewers and participants engaged with the study, after the first contact. Informal interviews and user group definition will help the comprehension of the study and allow to create personas to characterize the interviewers of the cohort study. These aforementioned methodologies will be supported by the workshop methodology under Participatory Design, acting as a testing ground for the previously developed processes, preparing interviewers to adapt their communication when facing people from different generations, education, and social backgrounds. By carrying out this project simultaneously with the cohort study, it’s possible to evaluate, over time, how the design methodologies can empower and facilitate communication and intervene, changing tactics in case it’s needed. The creation of a replicable experience is proposed allowing the betterment of the overall health of the population. Additionally, assuming the lack of information on how the preparatory phases of cohort studies are designed, it’s also envisaged the creation of guidelines and a good practice manual. It is also of great importance to point out the bridge established between the health and design fields, where design becomes the interface between science and the public.eng
dc.description.sponsorshipThe authors would like to acknowledge that the present article is part of two master’s thesis being developed to obtain a master’s degree in Design for Health and Well-being, conducted in the School of Arts and Design - Caldas da Rainha, Polytechnic of Leiria. These master’s thesis constitute an integral part of a Cohort Study taking place in the county of Leiria that involves CML, ciTechCare, ACES Pinhal Litoral, and LIDA. Also, the authors would like to acknowledge the assistance and financing from Fundação para a Ciência e a Tecnologia (FCT) (UIDB/05468/2020) and Laboratório de Investigação em Design e Artes (LIDA) that made the participation in the event possible.
dc.identifier.citationFerreira, E., Penedos-Santiago, E., Netto-Rocha, C., Marques, D., Santos, E., Dias, S. (2022). Cohort Study Good Practices: Design Communication and Capacitation Processes. In: Daniel Raposo, Nuno Martins and Daniel Brandão (eds) Human Dynamics and Design for the Development of Contemporary Societies. AHFE (2022) International Conference. AHFE Open Access, vol 25. AHFE International, USA. http://doi.org/10.54941/ahfe1001406
dc.identifier.doi10.54941/ahfe1001406
dc.identifier.urihttp://hdl.handle.net/10400.8/16627
dc.language.isoeng
dc.peerreviewedyes
dc.relationArts and Design Research Lab
dc.rights.uriN/A
dc.subjectService design
dc.subjectParticipatory design
dc.subjectCommunication design
dc.subjectCapacitation processes
dc.subjectCohort studies
dc.titleCohort Study Good Practices: Design Communication and Capacitation Processeseng
dc.typeconference paper
dspace.entity.typePublication
oaire.awardNumberUIDB/05468/2020
oaire.awardTitleArts and Design Research Lab
oaire.awardURIinfo:eu-repo/grantAgreement/FCT/6817 - DCRRNI ID/UIDB%2F05468%2F2020/PT
oaire.citation.conferenceDate2022
oaire.citation.endPage345
oaire.citation.startPage339
oaire.citation.titleHuman Dynamics and Design for the Development of Contemporary Societies
oaire.citation.volume25
oaire.fundingStream6817 - DCRRNI ID
oaire.versionhttp://purl.org/coar/version/c_970fb48d4fbd8a85
person.affiliation.nameLIDA / ESAD.CR
person.familyNameFerreira
person.familyNameDias
person.givenNameElga
person.givenNameSara
person.identifier.ciencia-id7511-CD1F-8E26
person.identifier.ciencia-idAA1F-9375-B5E6
person.identifier.orcid0000-0003-0348-7574
person.identifier.orcid0000-0001-6782-7481
person.identifier.ridI-9965-2018
person.identifier.scopus-author-id33367487300
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.nameFundação para a Ciência e a Tecnologia
relation.isAuthorOfPublication8427ead1-a437-44d0-9161-ddce33eb6325
relation.isAuthorOfPublicationa49e0bc6-cfea-4033-aebf-a1ef9e4c5e7b
relation.isAuthorOfPublication.latestForDiscovery8427ead1-a437-44d0-9161-ddce33eb6325
relation.isProjectOfPublicationdad84d05-27e7-492b-bd86-4f3612ccc2ca
relation.isProjectOfPublication.latestForDiscoverydad84d05-27e7-492b-bd86-4f3612ccc2ca

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