Logo do repositório
 
Publicação

The experiences of mothers in caring for children with complex health conditions during hospitalization in Brazil: a grounded theory analysis

2026-05Artigo científico Acesso aberto
Ver registo simples
datacite.subject.fosCiências Médicas::Ciências da Saúde
dc.contributor.authorHarmuch, Camila
dc.contributor.authorLaranjeira, Carlos
dc.contributor.authorLima, Ana Luísa Serrano
dc.contributor.authorHigarashi, Ieda Harumi
dc.contributor.authorJaques, André Estevam
dc.contributor.authorPaiano, Marcelle
dc.date.accessioned2026-04-01T14:57:08Z
dc.date.available2026-04-01T14:57:08Z
dc.date.issued2026-05
dc.description.abstractPurpose Children with Complex Health Conditions (CCHC) require prolonged, specialized, and multidisciplinary care, often demanding prolonged hospitalizations. In this context, mothers generally assume the role of primary caregivers, facing emotional, physical and social overload. However, their experiences during hospitalization remain little explored. This study aimed to understand the experiences and needs of mothers caring for CCHC during hospitalization. Design and methods This qualitative study used an inductive approach based on the Straussian Grounded Theory principles. Data collection took place between September 2024 and March 2025, through individual, in-person, semi-structured interviews, conducted with mothers of CCHC admitted to a Brazilian university hospital. Data analysis followed the constant comparison method, occurring simultaneously with collection, enabling the construction of categories and conceptual refinement. Results Sixteen mothers aged between 23 and 46 years (34.75 ± 7.55) were recruited. Data analysis generated the core category “Care experiences: balancing between light and shadow” around which three categories are anchored: 1) Dealing with the complexity of the disease and hospitalization; 2) Barriers to care dynamics during hospitalization; and 3) Enablers of care for children with complex health conditions. Conclusions The analysis of maternal experiences highlights the urgent need for care practices based on family-centered care models that recognize mothers as protagonists in the care process. Practice implications Findings support the implementation of institutional protocols that ensure effective communication, continuous support and qualification of professionals to promote a welcoming, safe and humanized environment, reducing the emotional and structural vulnerabilities faced by mothers who care for CCHC.eng
dc.description.sponsorshipThis work is supported by national funds through FCT—Fundação para a Ciência e a Tecnologia, I.P. (UID/05704/2025; doi:10.54499/UID/05704/2025, accessed on 20 November 2025)—and under the Scientific Employment Stimulus-Institutional Call (doi:10.54499/CEECINST/00051/2018/CP1566/CT0012, accessed on 20 November 2025). The work was also carried out with support from the Coordenação de Aperfeiçoamento de Pessoal de Nível Superior (CAPES) – Funding Code 001, in the form of a grant for the first author.
dc.identifier.citationCamila Harmuch, Carlos Laranjeira, Ana Luísa Serrano Lima, Ieda Harumi Higarashi, André Estevam Jaques, Marcelle Paiano, The experiences of mothers in caring for children with complex health conditions during hospitalization in Brazil: a grounded theory analysis, Journal of Pediatric Nursing, Volume 88, 2026, Pages 444-453, ISSN 0882-5963, https://doi.org/10.1016/j.pedn.2026.03.014. (https://www.sciencedirect.com/science/article/pii/S0882596326001260)
dc.identifier.doi10.1016/j.pedn.2026.03.014
dc.identifier.issn0882-5963
dc.identifier.urihttp://hdl.handle.net/10400.8/16065
dc.language.isoeng
dc.peerreviewedyes
dc.publisherElsevier
dc.relationCenter for Innovative Care and Health Technology
dc.relation.hasversionhttps://www.sciencedirect.com/science/article/pii/S0882596326001260
dc.relation.ispartofJournal of Pediatric Nursing
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/
dc.subjectChild
dc.subjectHospitalization
dc.subjectLong-term care
dc.subjectMothers
dc.subjectQualitative research
dc.titleThe experiences of mothers in caring for children with complex health conditions during hospitalization in Brazil: a grounded theory analysiseng
dc.typejournal article
dspace.entity.typePublication
oaire.awardNumberUIDB/05704/2020
oaire.awardTitleCenter for Innovative Care and Health Technology
oaire.awardURIinfo:eu-repo/grantAgreement/FCT/6817 - DCRRNI ID/UIDB%2F05704%2F2020/PT
oaire.citation.endPage453
oaire.citation.startPage444
oaire.citation.titleJournal of Pediatric Nursing
oaire.citation.volume88
oaire.fundingStream6817 - DCRRNI ID
oaire.versionhttp://purl.org/coar/version/c_970fb48d4fbd8a85
person.familyNameLaranjeira
person.givenNameCarlos
person.identifier.orcid0000-0003-1080-9535
person.identifier.scopus-author-id22957802900
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.nameFundação para a Ciência e a Tecnologia
relation.isAuthorOfPublication7c2157d8-cac9-4004-9438-e92fec260842
relation.isAuthorOfPublication.latestForDiscovery7c2157d8-cac9-4004-9438-e92fec260842
relation.isProjectOfPublicationd421b07d-3471-4026-aa43-def80b8e142b
relation.isProjectOfPublication.latestForDiscoveryd421b07d-3471-4026-aa43-def80b8e142b

Ficheiros

Principais
A mostrar 1 - 1 de 1
Miniatura
Nome:
The experiences of mothers in caring for children with complex health conditions during hospitalization in Brazil - a grounded theory analysis.pdf
Tamanho:
575.52 KB
Formato:
Adobe Portable Document Format
Ver/Abrir

Coleções

ciTechCare - Artigos
ESSLei - Artigos em revistas internacionais