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Therapeutic letters: A qualitative study exploring their influence on the hope of parents of children receiving pediatric palliative care in Portugal

2021Journal article Restricted access
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dc.contributor.authorFonseca, Ricardo
dc.contributor.authorCarvalho, Matilde
dc.contributor.authorQuerido, Ana
dc.contributor.authorFigueiredo, Maria H.
dc.contributor.authorBally, Jill
dc.contributor.authorCharepe, Zaida
dc.date.accessioned2022-03-23T17:14:00Z
dc.date.available2022-03-23T17:14:00Z
dc.date.issued2021
dc.description.abstractPurpose: The purpose of this qualitative descriptive study was to explore the hope experiences of parents of children diagnosed with complex chronic conditions (CCCs) who received therapeutic letters. Design and Methods: A purposive sample of 10 parents of inpatient children with CCCs was recruited from a pediatric palliative care unit in a Portuguese public hospital. A demographic form and audio‐recorded semi‐structured, face‐to‐face interviews were conducted with each participant to explore the experiences, processes, and meanings of hope, and to describe how parents of children receiving pediatric palliative care perceived the usefulness of receiving therapeutic letters. The interviews were transcribed verbatim, and using a thematic analysis, a systematic approach to data analysis was completed. Findings: Data analysis resulted in three main themes including Trust in the Future; Strengthening Hope; and Moments of Hope. Findings highlight the positive influence of therapeutic letters including supporting parental hope, facilitating personal inner‐strengthening, recognition of parental skills, and promotion of self‐efficacy during hospitalization. The themes and related subthemes add value to the existing literature and highlight the need for supportive palliative nursing care aimed at promoting parental hope. Practice Implications: To optimize the value of supporting parental hope, therapeutic letters can be delivered at the time of diagnosis, during times of celebration, and when learning the difficult tasks of daily childcare. Additional research can inform the development of a formal hope‐based intervention to provide an evidence base from which to enhance the well‐being of parental caregivers of children who have CCCs.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationFonseca, Ricardo & Carvalho, Matilde & Querido, Ana & Figueiredo, Maria & Bally, Jill & Charepe, Zaida. (2021). Therapeutic letters: A qualitative study exploring their influence on the hope of parents of children receiving pediatric palliative care in Portugal. Journal for Specialists in Pediatric Nursing. 26. 10.1111/jspn.12325.pt_PT
dc.identifier.doi10.1111/jspn.12325pt_PT
dc.identifier.issn1539-0136
dc.identifier.issn1744-6155
dc.identifier.urihttp://hdl.handle.net/10400.8/6817
dc.language.isoengpt_PT
dc.publisherWileypt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectChildrenpt_PT
dc.subjectHopept_PT
dc.subjectHospitalpt_PT
dc.subjectNursingpt_PT
dc.subjectPediatric palliative carept_PT
dc.subjectQualitative researchpt_PT
dc.subjectTherapeutic letterspt_PT
dc.titleTherapeutic letters: A qualitative study exploring their influence on the hope of parents of children receiving pediatric palliative care in Portugalpt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.issue3pt_PT
oaire.citation.titleJournal for Specialists in Pediatric Nursingpt_PT
oaire.citation.volume26pt_PT
person.familyNameCarvalho
person.familyNameQuerido
person.familyNameFigueiredo
person.familyNameBally
person.familyNameBorges Charepe
person.givenNameMatilde Silva
person.givenNameAna
person.givenNameMaria
person.givenNameJill M. G.
person.givenNameZaida
person.identifierN2rFLfoAAAAJ&hl
person.identifier.ciencia-idE311-0BBA-444F
person.identifier.ciencia-idEE1E-74DE-F52E
person.identifier.ciencia-idEA12-4C7A-135A
person.identifier.orcid0000-0002-4267-4738
person.identifier.orcid0000-0002-5021-773X
person.identifier.orcid0000-0001-7902-9751
person.identifier.orcid0000-0003-2670-9109
person.identifier.orcid0000-0003-0080-4482
person.identifier.ridK-5160-2013
person.identifier.scopus-author-id55044697000
person.identifier.scopus-author-id35745677600
person.identifier.scopus-author-id34876167700
rcaap.rightsclosedAccesspt_PT
rcaap.typearticlept_PT
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