Logo do repositório
 
Publicação

Participatory Co-design: Approaches to Enable People Living with Challenging Health Conditions to Participate in Design Research

2021Artigo científico Acesso restrito
Ver registo simples
datacite.subject.sdg03:Saúde de Qualidade
datacite.subject.sdg12:Produção e Consumo Sustentáveis
datacite.subject.sdg13:Ação Climática
dc.contributor.authorNeves, S.
dc.contributor.authorMacdonald, A.
dc.contributor.authorPoole, M.
dc.contributor.authorDening, K. Harrison
dc.date.accessioned2026-07-17T15:08:11Z
dc.date.available2026-07-17T15:08:11Z
dc.date.issued2021
dc.description.abstractAbstract People are living longer and are affected by challenging chronic, lifestyleand age-related conditions such as dementia and stroke. The increasing number of people living with challenging health conditions highlights social concerns and their implications for the successful delivery of healthcare services. Research on improving dementia care [Alzheimer’s Disease International (2016) World Alzheimer Report 2016: Improving healthcare for people living with dementia: coverage, quality and costs now and in the future. Alzheimer’s Disease International, London] shows a need to involve people living with dementia, their families, and health and social care professionals when designing improvements to their healthcare services. In addition, involving patients recovering from stroke in discussions about rehabilitation services has been considered important to enable making decisions that better address their health care needs [Kristensen HK, Tistad M, Koch LV, Ytterberg C (2016) The importance of patient involvement in stroke rehabilitation. PLOS One 11(6). 10.1371/journal.pone.0157149]. This paper presents two case studies of a participatory co-design approach used to engage people; (a) living with dementia, and (b) recovering from stroke in design research, where co-design-led methods were used to enable participation. The paper describes the importance of each of the roles of—and relationships between—individuals involved in the participatory co-design research process and how people living with challenging health conditions are enabled to participate in a form of three-way relationship. It discusses lessons learned, reflections and recommendations for a new collaborative model for people living with challenging health conditions engagement to enable a more equal and reciprocal partnership for participation in design research into healthcare improvements.eng
dc.description.sponsorshipCase study 1was funded by the FCT – Fundação para a Ciência e a Tecnologia (QREN, POPH e Fundo Social Europeu) [SFRH/BD/64562/2009]. Case study 2 presents independent research funded by the National Institute for Health Research (NIHR) under its Programme Grants for Applied Research (Grant Reference Number RP-PG-0611-20005), led by Professor Dame Louise Robinson, Newcastle University. The views expressed in this publication are those of the authors and not necessarily those of the NIHR or the Department of Health and Social Care.We are very grateful to all participants for their time and enthusiasm. The articlewas kindly supported by Fundação para a Ciência e a Tecnologia (FCT) (UIDB/05468/2020), Laboratório de Investigação em Design e Artes (LIDA) and Politécnico de Leiria.
dc.identifier.citationNeves, S., Macdonald, A., Poole, M., Harrison Dening, K. (2021). Participatory Co-design: Approaches to Enable People Living with Challenging Health Conditions to Participate in Design Research". 193-216. Springer International Publishing, 2021. 10.1007/978-3-030-75867-7_13
dc.identifier.doi10.1007/978-3-030-75867-7_13
dc.identifier.urihttp://hdl.handle.net/10400.8/16616
dc.language.isoeng
dc.peerreviewedyes
dc.publisherSpringer Nature
dc.relationArts and Design Research Lab
dc.relation.hasversionhttps://link.springer.com/chapter/10.1007/978-3-030-75867-7_13
dc.rights.uriN/A
dc.subjectParticipatory co-design research
dc.subjectPeople living with challenging health conditions’ engagement
dc.subjectCo-design-led methods
dc.titleParticipatory Co-design: Approaches to Enable People Living with Challenging Health Conditions to Participate in Design Researcheng
dc.typejournal article
dspace.entity.typePublication
oaire.awardNumberUIDB/05468/2020
oaire.awardTitleArts and Design Research Lab
oaire.awardURIinfo:eu-repo/grantAgreement/FCT/6817 - DCRRNI ID/UIDB%2F05468%2F2020/PT
oaire.citation.endPage216
oaire.citation.startPage193
oaire.fundingStream6817 - DCRRNI ID
oaire.versionhttp://purl.org/coar/version/c_970fb48d4fbd8a85
person.affiliation.nameLIDA / ESAD.CR
person.familyNameNeves
person.givenNameSandra
person.identifier.ciencia-id5B11-280A-E9BD
person.identifier.orcid0000-0002-1679-6002
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.nameFundação para a Ciência e a Tecnologia
relation.isAuthorOfPublicationf7bff82d-59f7-4a4c-bce6-22416111448e
relation.isAuthorOfPublication.latestForDiscoveryf7bff82d-59f7-4a4c-bce6-22416111448e
relation.isProjectOfPublicationdad84d05-27e7-492b-bd86-4f3612ccc2ca
relation.isProjectOfPublication.latestForDiscoverydad84d05-27e7-492b-bd86-4f3612ccc2ca

Ficheiros

Principais
A mostrar 1 - 1 de 1
Miniatura indisponível
Nome:
Nevesetal2021_Participatoryco-design.pdf
Tamanho:
1.05 MB
Formato:
Adobe Portable Document Format
Ver/Abrir
Licença
A mostrar 1 - 1 de 1
Miniatura indisponível
Nome:
license.txt
Tamanho:
1.32 KB
Formato:
Item-specific license agreed upon to submission
Descrição:
Ver/Abrir

Coleções

LIDA - Artigos em revistas internacionais
ESAD.CR - Artigos em revistas internacionais