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Construct validity and reliability of the Informal Caregiver Burden Assessment Questionnaire (QASCI) in caregivers of patients with COPD

2022-12Journal article Open access
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dc.contributor.authorHipólito, Nádia
dc.contributor.authorMartins, Sara
dc.contributor.authorRuivo, Adriana
dc.contributor.authorFlora, Sofia
dc.contributor.authorSilva, Cândida G.
dc.contributor.authorMarques, Alda
dc.contributor.authorBrooks, Dina
dc.contributor.authorCruz, Joana
dc.date.accessioned2022-11-08T10:35:31Z
dc.date.available2022-11-08T10:35:31Z
dc.date.issued2022-12
dc.descriptionHighlights • Caring for a person with COPD can impact several dimensions of caregivers' lives. • The caregiving experience should be assessed to develop tailored interventions. • The QASCI tool presented good construct validity and reliability results. • It may be valuable to assess caregiving burden in caregivers of patients with COPD.pt_PT
dc.description.abstractIntroduction: COPD often leads to loss of independence in daily activities which may increase the dependency on the informal caregiver, resulting in caregiving burden. Several instruments have been used to assess caregiving burden in COPD; however, their measurement properties have been poorly investigated in this population. This study assessed the construct validity and reliability of the Informal Caregiver Burden Assessment Questionnaire (QASCI) in informal caregivers of patients with COPD. Methods: Participants completed the QASCI (higher scores indicate higher burden) and the following questionnaires to assess construct validity: Zarit Burden Interview (ZBI), Hospital Anxiety and Depression Scale (HADS) and World Health Organization Quality of Life Instrument – Short Form (WHOQOL-Bref). QASCI was completed again one week later to assess test-retest reliability. Statistical analyses included: Pearson’s (r) or Spearman’s (ρ) correlations (construct validity); Cronbach’s α (internal consistency); Intraclass Correlation Coefficient (ICC2,1, test-retest reliability) and Standard Error of Measurement (SEM), Minimal Detectable Change (MDC95) and Bland and Altman 95% Limits of Agreement (LoA). Results: Fifty caregivers (62.7 ± 9.8 years, 88% female; patients’ FEV1 = 45.2 ± 21.3%predicted) participated. QASCI mean score was 28.5 ± 19.8 (moderate burden). QASCI was positively correlated with ZBI (r = 0.908; p < 0.01), HADS anxiety (r = 0.613; p < 0.01) and depression (ρ = 0.634; <0.01) and negatively correlated with WHOQOL-Bref (􀀀 0.476 to 􀀀 0.739) (all p < 0.01). Cronbach’s α was 0.793 for the QASCI total score (subscales: 0.747–0.932). The ICC2,1 was 0.924, SEM 2.8 and MDC95 7.8, and the LoA were 􀀀 18.3 to 11.1. Conclusions: The QASCI seems to be a promising measure to assess burden levels associated with informal caregiving in COPD.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationHipólito, N., Martins, S., Ruivo, A., Flora, S., Silva, C. G., Marques, A., Brooks, D. & Cruz, J. (2022). Construct validity and reliability of the Informal Caregiver Burden Assessment Questionnaire (QASCI) in caregivers of patients with COPD. Respiratory Medicine, Volume 205, 107027. https://doi.org/10.1016/j.rmed.2022.107027.pt_PT
dc.identifier.doihttps://doi.org/10.1016/j.rmed.2022.107027pt_PT
dc.identifier.issn0954-6111
dc.identifier.urihttp://hdl.handle.net/10400.8/7834
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherElsevierpt_PT
dc.relationPOCI-01-0145- FEDER-028446pt_PT
dc.relationUIDB/ 05704/2020pt_PT
dc.relationAveiro Institute of Biomedicine
dc.relationDFA/BD/6954/ 2020pt_PT
dc.relation.publisherversionhttps://www.sciencedirect.com/science/article/pii/S095461112200292X?via%3Dihubpt_PT
dc.subjectBurdenpt_PT
dc.subjectCaregivingpt_PT
dc.subjectChronic obstructive pulmonary diseasept_PT
dc.subjectDistresspt_PT
dc.subjectInformal caregiverpt_PT
dc.titleConstruct validity and reliability of the Informal Caregiver Burden Assessment Questionnaire (QASCI) in caregivers of patients with COPDpt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.awardTitleAveiro Institute of Biomedicine
oaire.awardURIinfo:eu-repo/grantAgreement/FCT/9471 - RIDTI/PTDC%2FSAU-SER%2F28446%2F2017/PT
oaire.awardURIinfo:eu-repo/grantAgreement/FCT/6817 - DCRRNI ID/UIDB%2F04501%2F2020/PT
oaire.citation.startPage107027pt_PT
oaire.citation.titleRespiratory Medicinept_PT
oaire.citation.volume205pt_PT
oaire.fundingStream9471 - RIDTI
oaire.fundingStream6817 - DCRRNI ID
person.familyNameHipólito
person.familyNameFlora
person.familyNameSilva
person.familyNameCruz
person.givenNameNádia
person.givenNameSofia
person.givenNameCândida
person.givenNameJoana
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person.identifier.ciencia-id551E-FBBD-E7ED
person.identifier.ciencia-idD513-D305-7FD1
person.identifier.ciencia-idE213-7D20-5C3C
person.identifier.orcid0000-0003-1796-6218
person.identifier.orcid0000-0002-2365-0431
person.identifier.orcid0000-0002-7092-1169
person.identifier.orcid0000-0002-4911-4469
person.identifier.ridK-7030-2013
person.identifier.scopus-author-id55429869600
person.identifier.scopus-author-id36715922000
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.nameFundação para a Ciência e a Tecnologia
project.funder.nameFundação para a Ciência e a Tecnologia
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
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