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PREPAREDNESS FOR CAREGIVING ROLE AND TELEHEALTH USE TO PROVIDE INFORMAL PALLIATIVE HOME CARE
| Name: | Description: | Size: | Format: | |
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| 3.38 MB | Adobe PDF |
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Abstract(s)
Os cuidados paliativos (CP) são cuidados ativos e integrados, prestados por equipas
interdisciplinares, que se baseiam em princípios ético-morais e de planeamento
antecipado de cuidados, pelo que não antecipam, nem prolongam o processo de morte.
O presente relatório final resulta da experiência desenvolvida no âmbito do Mestrado
em Cuidados Paliativos da Escola Superior de Saúde do Instituto Politécnico de Leiria,
e pretende evidenciar o desenvolvimento de competências enquanto mestre em CP, ao
longo de três ensinos clínicos, designadamente: unidade de internamento em CP;
equipa comunitária e equipa intra-hospitalar de suporte em CP.
Na primeira parte do relatório é efetuada a caracterização dos contextos de
aprendizagem. Na segunda parte, é efetuada a análise crítico-reflexiva das
competências desenvolvidas, tendo sido a sua organização orientada pelos referenciais
da European Association for Palliative Care (EAPC) e pelo ciclo de Gibbs. Por fim, é
apresentado um estudo qualitativo com o objetivo de descrever como os cuidadores
informais se sentem preparados para prestar CP no domicílio, caracterizar as suas
experiências, bem como analisar o potencial da telesaúde na gestão do cuidado diário.
Os achados obtidos apontam para a importância de uma abordagem sistematizada que
integre a formação, o apoio emocional e a articulação eficaz dos recursos da
comunidade. Com efeito, a abordagem em CP, requer para além da competência
técnica, uma consciência ético-relacional, e práticas compassivas, ajustadas à
singularidade de cada pessoa.
Em suma, as aprendizagens adquiridas permitiram desenvolver competências pessoais,
clínicas, psicossociais e ético-deontológicas inerentes aos CP especializados.
Promoveram ainda uma maior sensibilidade para a valorização da morte e do processo
de morrer como partes integrantes do desenvolvimento humano.
Palliative care (PC) is an active and integrated care provided by interdisciplinary teams and is based on ethical-moral principles and advance care planning, so it does not anticipate or prolong the dying process. This final report is the result of the experience developed within the scope of the master’s degree in Palliative Care at the Escola Superior de Saúde do Instituto Politécnico de Leiria and aims to highlight the development of skills as a master in PC, throughout three clinical courses, namely: inpatient PC unit, community team and intra-hospital support team in PC. The first part of the report characterizes the learning contexts. The second part carries out a critical-reflective analysis of the skills developed, having been guided by the references of the European Association for Palliative Care (EAPC) and the Gibbs cycle. Finally, a qualitative study is presented with the aim of describing how informal caregivers feel prepared to provide PC at home, characterizing their experiences, and analyzing the potential of telehealth in managing daily care. The findings point to the importance of a systematic approach that integrates training, emotional support, and effective coordination with community resources. In fact, the PC approach requires more than technical competence, ethical-relational awareness, and compassionate practices, adjusted to the uniqueness of each person. In sum, the learning acquired allowed the development of personal, clinical, psychosocial, and ethical-deontological skills specific to specialized PC care. It also promoted greater sensitivity to the appreciation of death and the dying process as integral parts of human development.
Palliative care (PC) is an active and integrated care provided by interdisciplinary teams and is based on ethical-moral principles and advance care planning, so it does not anticipate or prolong the dying process. This final report is the result of the experience developed within the scope of the master’s degree in Palliative Care at the Escola Superior de Saúde do Instituto Politécnico de Leiria and aims to highlight the development of skills as a master in PC, throughout three clinical courses, namely: inpatient PC unit, community team and intra-hospital support team in PC. The first part of the report characterizes the learning contexts. The second part carries out a critical-reflective analysis of the skills developed, having been guided by the references of the European Association for Palliative Care (EAPC) and the Gibbs cycle. Finally, a qualitative study is presented with the aim of describing how informal caregivers feel prepared to provide PC at home, characterizing their experiences, and analyzing the potential of telehealth in managing daily care. The findings point to the importance of a systematic approach that integrates training, emotional support, and effective coordination with community resources. In fact, the PC approach requires more than technical competence, ethical-relational awareness, and compassionate practices, adjusted to the uniqueness of each person. In sum, the learning acquired allowed the development of personal, clinical, psychosocial, and ethical-deontological skills specific to specialized PC care. It also promoted greater sensitivity to the appreciation of death and the dying process as integral parts of human development.
Description
Keywords
Cuidados paliativos Fim de vida Competência Cuidadores informais Domicílio