Publication
Lived Experiences of Physiotherapists in Caring for People with Advanced Amyotrophic Lateral Sclerosis in Portugal: A Phenomenological Study
| datacite.subject.fos | Ciências Médicas::Ciências da Saúde | |
| datacite.subject.sdg | 03:Saúde de Qualidade | |
| datacite.subject.sdg | 04:Educação de Qualidade | |
| datacite.subject.sdg | 17:Parcerias para a Implementação dos Objetivos | |
| dc.contributor.author | Monteiro, Andreia | |
| dc.contributor.author | Ali, Amira Mohammed | |
| dc.contributor.author | Laranjeira, Carlos | |
| dc.date.accessioned | 2025-07-21T15:01:26Z | |
| dc.date.available | 2025-07-21T15:01:26Z | |
| dc.date.issued | 2025-04-10 | |
| dc.description | Article number - 510 | |
| dc.description | (This article belongs to the Special Issue Narrative Approaches and Practice in Health Psychology) | |
| dc.description.abstract | Amyotrophic lateral sclerosis (ALS) is a disease that has a multidimensional impact on a person’s life, with symptoms associated with a significant loss of autonomy. Specialized palliative care (PC) should be provided early and throughout the course of the disease. Indeed, physiotherapists should be understood as integral members of the multidisciplinary team in PC, in the care and improvement of the quality of life of these people. This study aimed to describe the lived experience of physiotherapists in the context of intervention in people with advanced ALS and their families. Descriptive phenomenology was employed as a framework for conducting semi-structured interviews to reveal experiences. Sixteen physiotherapists who performed interventions on at least one person with advanced ALS in the last 2 years were included in the study. The study involved conducting semi-structured individual interviews, through the Zoom® videoconferencing platform (version 6.4.3). Data were analyzed according to Giorgi’s five-stage approach and managed using webQDA software (Version 3.0, University of Aveiro, Aveiro, Portugal). The COREQ checklist was applied in the study. Participants were mostly female (n = 12) and aged between 26 and 55 years (M = 36.81; SD = 6.75). Four constituents were identified: (1) undulating course of a complex disease; (2) barriers to person-centered care; (3) enablers of person-centered care; (4) transition between curative and palliative care. The findings illustrate the multidimensional impact of the disease trajectory on the person and their family. This study highlights the need to invest in specialized training for physiotherapists, contributing to a person-centered PC practice with an impact on promoting comfort and quality of life. | eng |
| dc.description.sponsorship | Funding: This work is funded by national funds through the FCT—Fundação para a Ciência e a Tecnologia, I.P. (UIDB/05704/2020 and UIDP/05704/2020)—and under the Scientific Employment Stimulus-Institutional Call (https://doi.org/10.54499/CEECINST/00051/2018/CP1566/CT0012). | |
| dc.identifier.citation | Monteiro, A., Ali, A. M., & Laranjeira, C. (2025). Lived Experiences of Physiotherapists in Caring for People with Advanced Amyotrophic Lateral Sclerosis in Portugal: A Phenomenological Study. Behavioral Sciences, 15(4), 510. https:// doi.org/10.3390/bs15040510 | |
| dc.identifier.doi | 10.3390/bs15040510 | |
| dc.identifier.issn | 2076-328X | |
| dc.identifier.uri | http://hdl.handle.net/10400.8/13735 | |
| dc.language.iso | eng | |
| dc.peerreviewed | yes | |
| dc.publisher | MDPI | |
| dc.relation | Center for Innovative Care and Health Technology | |
| dc.relation.hasversion | https://www.mdpi.com/2076-328X/15/4/510 | |
| dc.relation.ispartof | Behavioral Sciences | |
| dc.rights.uri | http://creativecommons.org/licenses/by/4.0/ | |
| dc.subject | Neurodegenerative disease | |
| dc.subject | Amyotrophic lateral sclerosis | |
| dc.subject | Palliative care | |
| dc.subject | Physiotherapy | |
| dc.subject | Rehabilitation | |
| dc.subject | Qualitative study | |
| dc.title | Lived Experiences of Physiotherapists in Caring for People with Advanced Amyotrophic Lateral Sclerosis in Portugal: A Phenomenological Study | eng |
| dc.type | journal article | |
| dspace.entity.type | Publication | |
| oaire.awardTitle | Center for Innovative Care and Health Technology | |
| oaire.awardURI | info:eu-repo/grantAgreement/FCT/6817 - DCRRNI ID/UIDP%2F05704%2F2020/PT | |
| oaire.citation.issue | 4 | |
| oaire.citation.title | Behavioral Sciences | |
| oaire.citation.volume | 15 | |
| oaire.fundingStream | 6817 - DCRRNI ID | |
| oaire.version | http://purl.org/coar/version/c_970fb48d4fbd8a85 | |
| person.familyName | Laranjeira | |
| person.givenName | Carlos | |
| person.identifier.orcid | 0000-0003-1080-9535 | |
| person.identifier.scopus-author-id | 22957802900 | |
| project.funder.identifier | http://doi.org/10.13039/501100001871 | |
| project.funder.name | Fundação para a Ciência e a Tecnologia | |
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