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Managing long COVID symptoms and accessing health services in Brazil: A grounded theory analysis

2024-04-15Journal article Open access
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dc.contributor.authorMarques, Francielle Renata Danielli Martins
dc.contributor.authorLaranjeira, Carlos
dc.contributor.authorCarreira, Lígia
dc.contributor.authorGallo, Adriana Martins
dc.contributor.authorBaccon, Wanessa Cristina
dc.contributor.authorGoes, Herbert de Freitas
dc.contributor.authorSalci, Maria Aparecida
dc.date.accessioned2024-09-03T13:56:02Z
dc.date.available2024-09-03T13:56:02Z
dc.date.issued2024-04-15
dc.descriptionFunding This work is supported by national funds through FCT—Fundação para a Ciência e a Tecnologia, I.P. (UIDB/05704/2020 and UIDP/05704/2020) and under the Scientific Employment Stimulus-Institutional Call (https://doi.org/10.54499/CEECINST/00051/2018/CP1566/CT0012, accessed on December 30, 2023).pt_PT
dc.description.abstractBackground The worldwide community has shown significant interest in researching the management of Long COVID. However, there is scarce evidence about the daily experiences of people living with Long COVID and their insights into the healthcare services provided to them. Aims This study aims to understand the experience of Long COVID sufferers with their symptoms and in accessing health services. Method We employed Charmaz's grounded theory methodology, informed by constructivism, and applied the COREQ guidelines for qualitative research. Sixty-six Brazilians living with Long COVID participated in the study. The data was collected using semi-structured telephone interviews and analyzed using a constant comparative process. Findings The findings refer firstly to the consequences of persistent Long COVID symptoms. Secondly, they describe how the disease trajectory required Long COVID sufferers to reorganize their routines and develop adaptive strategies. Lastly, they reflect a diverse array of both positive and negative interactions inside the healthcare system conveyed by individuals suffering from Long COVID. These elements converge towards the core category of the study: “The limbo of Long COVID sufferers: between the persistence of symptoms and access to health services”. Conclusions Long COVID is characterized by its varied nature, including a range of physical and emotional repercussions experienced by individuals. There is a need for enhanced comprehension and discourse about Long COVID across several domains, including the general public, policy-making entities, and healthcare professionals. In this sense, the development of specialized services or the reinforcement of existing services to support long COVID sufferers is imperative.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationMarques, F., Laranjeira, C., Carreira, L., Gallo, A., Baccon, W., Goes, H. & Salci, M. (2024). Managing long COVID symptoms and accessing health services in Brazil: A grounded theory analysis. Heliyon, 10(7): e28369. https://doi.org/10.1016/j.heliyon.2024.e28369pt_PT
dc.identifier.doihttps://doi.org/10.1016/j.heliyon.2024.e28369pt_PT
dc.identifier.eissn2405-8440
dc.identifier.othere28369
dc.identifier.urihttp://hdl.handle.net/10400.8/9986
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherElsevierpt_PT
dc.relationCenter for Innovative Care and Health Technology
dc.relationCenter for Innovative Care and Health Technology
dc.relationNot Available
dc.relation.publisherversionhttps://pubmed.ncbi.nlm.nih.gov/38571660/pt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectCOVID-19pt_PT
dc.subjectLong COVIDpt_PT
dc.subjectHealthcare accesspt_PT
dc.subjectExperiencespt_PT
dc.subjectGrounded theorypt_PT
dc.subjectbrazilpt_PT
dc.titleManaging long COVID symptoms and accessing health services in Brazil: A grounded theory analysispt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.awardTitleCenter for Innovative Care and Health Technology
oaire.awardTitleCenter for Innovative Care and Health Technology
oaire.awardTitleNot Available
oaire.awardURIinfo:eu-repo/grantAgreement/FCT/6817 - DCRRNI ID/UIDB%2F05704%2F2020/PT
oaire.awardURIinfo:eu-repo/grantAgreement/FCT/6817 - DCRRNI ID/UIDP%2F05704%2F2020/PT
oaire.awardURIinfo:eu-repo/grantAgreement/FCT/CEEC INST 2018/CEECINST%2F00051%2F2018%2FCP1566%2FCT0012/PT
oaire.citation.issue7pt_PT
oaire.citation.titleHeliyonpt_PT
oaire.citation.volume10pt_PT
oaire.fundingStream6817 - DCRRNI ID
oaire.fundingStream6817 - DCRRNI ID
oaire.fundingStreamCEEC INST 2018
person.familyNameLaranjeira
person.givenNameCarlos
person.identifier.orcid0000-0003-1080-9535
person.identifier.scopus-author-id22957802900
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.nameFundação para a Ciência e a Tecnologia
project.funder.nameFundação para a Ciência e a Tecnologia
project.funder.nameFundação para a Ciência e a Tecnologia
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
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relation.isAuthorOfPublication.latestForDiscovery7c2157d8-cac9-4004-9438-e92fec260842
relation.isProjectOfPublicationd421b07d-3471-4026-aa43-def80b8e142b
relation.isProjectOfPublicatione5ceb42e-60fb-425d-8576-b213fc64081f
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