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Preparedness for Caregiving Role and Telehealth Use to Provide Informal Palliative Home Care in Portugal: A Qualitative Study

2024-09Journal article Open access
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dc.contributor.authorCaetano, Paula
dc.contributor.authorQuerido, Ana
dc.contributor.authorLaranjeira, Carlos
dc.date.accessioned2024-10-09T16:03:22Z
dc.date.available2024-10-09T16:03:22Z
dc.date.issued2024-09
dc.descriptionThis article belongs to the Special Issue New Advances in Palliative Care.pt_PT
dc.descriptionFunding: This study received funding under the project Help2Care-PAL: Support the caregiver in palliative care, funded by Fundação “LaCaixa” (IC21-00035). This work is also supported by national funds through FCT—Fundação para a Ciência e a Tecnologia, I.P. (UIDB/05704/2020 and UIDP/05704/2020)—and under the Scientific Employment Stimulus-Institutional Call (https://doi.org/10.54499/CEECINST/00051/2018/CP1566/CT0012, accessed on 20 August 2024).pt_PT
dc.description.abstractBackground/Objectives: Given the increasing occurrence of long-term illnesses, it is imperative to focus on adequately preparing and assisting those who assume the responsibility of caregiving. Our study aims to explore whether caregivers feel prepared to provide informal palliative home care, their experiences, and the usefulness of telehealth in managing daily activities. Methods: Using a descriptive qualitative research design and a purposeful sampling technique, thirteen primary family caregivers who provide informal palliative home care were recruited. Data collection was conducted through face-to-face individual interviews conducted from May 2023 to July 2023. Data were analyzed using Braun and Clarke’s reflexive thematic analysis. Results: Caregivers were mainly female (n = 8) with a mean age of 59.5 years (SD = 9.42). Based on our findings, three overarching themes emerged: (1) becoming a caregiver, (2) support-from-home palliative care team, and (3) telehealth in palliative home care. The reasons that influence the preparedness of family caregivers include their own desires, health conditions, their range of responsibilities, and the consequences that arise from the situation’s complexity. Telehealth helps fulfill the patient’s wishes to be at home in EoL and provides caregivers with access to professional guidance and support. Conclusions: Specialized home-based palliative care teams must be aware of caregivers’ self-assurance, knowledge, skills, and aptitudes in carrying out daily responsibilities and in managing emotions to improve preparedness for caregiving, loss, and its aftermath. The provision of professional PC services in the home along with a robust support system for informal caregivers is invaluable.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationCaetano, P.; Querido, A.; Laranjeira, C. Preparedness for Caregiving Role and Telehealth Use to Provide Informal Palliative Home Care in Portugal: A Qualitative Study. Healthcare 2024, 12, 1915. https://doi.org/10.3390/healthcare12191915pt_PT
dc.identifier.doihttps://doi.org/10.3390/healthcare12191915pt_PT
dc.identifier.eissn2227-9032
dc.identifier.urihttp://hdl.handle.net/10400.8/10158
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherMDPI (Multidisciplinary Digital Publishing Institute)pt_PT
dc.relationproject Help2Care-PAL: Support the caregiver in palliative care, funded by Fundação “LaCaixa” (IC21-00035)pt_PT
dc.relationCenter for Innovative Care and Health Technology
dc.relationCenter for Innovative Care and Health Technology
dc.relationNot Available
dc.relation.publisherversionhttps://www.mdpi.com/2227-9032/12/19/1915pt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectCaregiverspt_PT
dc.subjectHome carept_PT
dc.subjectPalliative carept_PT
dc.subjectPreparednesspt_PT
dc.subjectTelehealthpt_PT
dc.subjectQualitative studypt_PT
dc.subjectPortugalpt_PT
dc.titlePreparedness for Caregiving Role and Telehealth Use to Provide Informal Palliative Home Care in Portugal: A Qualitative Studypt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.awardTitleCenter for Innovative Care and Health Technology
oaire.awardTitleCenter for Innovative Care and Health Technology
oaire.awardTitleNot Available
oaire.awardURIinfo:eu-repo/grantAgreement/FCT/6817 - DCRRNI ID/UIDB%2F05704%2F2020/PT
oaire.awardURIinfo:eu-repo/grantAgreement/FCT/6817 - DCRRNI ID/UIDP%2F05704%2F2020/PT
oaire.awardURIinfo:eu-repo/grantAgreement/FCT/CEEC INST 2018/CEECINST%2F00051%2F2018%2FCP1566%2FCT0012/PT
oaire.citation.issue19pt_PT
oaire.citation.startPage1915pt_PT
oaire.citation.titleHealthcarept_PT
oaire.citation.volume12pt_PT
oaire.fundingStream6817 - DCRRNI ID
oaire.fundingStream6817 - DCRRNI ID
oaire.fundingStreamCEEC INST 2018
person.familyNameQuerido
person.familyNameLaranjeira
person.givenNameAna
person.givenNameCarlos
person.identifier.ciencia-idE311-0BBA-444F
person.identifier.orcid0000-0002-5021-773X
person.identifier.orcid0000-0003-1080-9535
person.identifier.scopus-author-id22957802900
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.nameFundação para a Ciência e a Tecnologia
project.funder.nameFundação para a Ciência e a Tecnologia
project.funder.nameFundação para a Ciência e a Tecnologia
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublication51328dd6-b900-4ffa-adf1-f7ee0262648c
relation.isAuthorOfPublication7c2157d8-cac9-4004-9438-e92fec260842
relation.isAuthorOfPublication.latestForDiscovery7c2157d8-cac9-4004-9438-e92fec260842
relation.isProjectOfPublicationd421b07d-3471-4026-aa43-def80b8e142b
relation.isProjectOfPublicatione5ceb42e-60fb-425d-8576-b213fc64081f
relation.isProjectOfPublication19872871-0651-493b-a0e9-1e55fe34cd2d
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