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Contribuição do Design para perceber e melhorar a experiência dos Cuidadores Informais de pessoas com Demência
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Abstract(s)
De acordo com a Organização Mundial de Saúde, em 2021, estimava-se que, em todo o mundo, havia mais de 55 milhões de pessoas a viver com demência. Referindo ainda que se previa que esse número aumente para 78 milhões de pessoas em 2030 e para 139 milhões em 2050. Especialistas indicam que o número de casos pode aumentar significativamente devido ao envelhecimento da população e ao crescimento de fatores de risco associados às doenças neurodegenerativas, como o Alzheimer.
A demência é considerada uma síndrome complexa associada às populações idosas, sendo progressiva e levando, em última instância, à morte. Esta caracteriza-se por distúrbios em várias funções, incluindo a memória, a cognição, a orientação, a compreensão, a linguagem, a capacidade de aprendizagem e de julgamento.
A presente investigação tem como objetivo compreender a experiência dos cuidadores informais de pessoas com Demência. Identificar as dificuldades que estes cuidadores experienciam no cuidado quotidiano e as estratégias utilizadas. As metodologias utilizadas baseiam-se na aplicação de métodos qualitativos, incluindo observações de campo no centro de dia da entidade envolvida no estudo, na residência do paciente, bem como entrevistas com cuidadores e profissionais de saúde. O objetivo é identificar e reunir um conjunto de necessidades e estratégias para apoiar os cuidadores informais na prestação de cuidados a pessoas com demência e orientar os designers em futuras intervenções de design, com o intuito de auxiliar estes cuidadores.
According to the World Health Organization, in 2021 it was estimated that more than 55 million people worldwide were living with dementia. This number is expected to rise to 78 million people by 2030 and 139 million by 2050. Experts indicate that the number of cases could increase significantly due to the ageing of the population and the growth of risk factors associated with neurodegenerative diseases, such as Alzheimer's. Dementia is considered a complex syndrome associated with the elderly, which is progressive and ultimately leads to death. It is characterized by disturbances in various functions, including memory, cognition, orientation, comprehension, language, learning ability and judgment. This research aims to understand the experience of informal caregivers of people with dementia. To identify the difficulties these caregivers experience in their daily care and the strategies they use. The methodologies used are based on the application of qualitative methods, including field observations in the day center of the entity involved in the study, in the patient's home, as well as interviews with caregivers and health professionals. The aim is to develop a set of needs and strategies to support informal caregivers of people with dementia and to guide designers in future design interventions to assist these caregivers.
According to the World Health Organization, in 2021 it was estimated that more than 55 million people worldwide were living with dementia. This number is expected to rise to 78 million people by 2030 and 139 million by 2050. Experts indicate that the number of cases could increase significantly due to the ageing of the population and the growth of risk factors associated with neurodegenerative diseases, such as Alzheimer's. Dementia is considered a complex syndrome associated with the elderly, which is progressive and ultimately leads to death. It is characterized by disturbances in various functions, including memory, cognition, orientation, comprehension, language, learning ability and judgment. This research aims to understand the experience of informal caregivers of people with dementia. To identify the difficulties these caregivers experience in their daily care and the strategies they use. The methodologies used are based on the application of qualitative methods, including field observations in the day center of the entity involved in the study, in the patient's home, as well as interviews with caregivers and health professionals. The aim is to develop a set of needs and strategies to support informal caregivers of people with dementia and to guide designers in future design interventions to assist these caregivers.
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Keywords
Cuidadores Informais Demência Literacia em Saúde Estratégias
Pedagogical Context
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CC License
Without CC licence