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Publication
Bridging design and health: Communication and capacitation processes in a cohort study
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Abstract(s)
The project began on the basis of the Strategic Health Plan for the
municipality of Leiria developed by Leiria City Council and ACES
Pinhal Litoral (ACES Pinhal Litoral, 2019), which showed the high
number of people going to the Emergency Room (ER) with minor
problems, leading to a flooding of the emergency systems and a high
rate of metabolic diseases and comorbidities in the municipality of
Leiria. It is hypothesised that this data is being caused by the
population's low levels of health literacy. Health literacy is the ability
of a person to obtain, read, understand and use health care
information to make appropriate health decisions, to use healthcare
services and understand treatment instructions given by health
professionals (Pedro et al, 2016). Thus, low levels of health literacy in
the population can have a negative impact on the quality of health,
the way people use and interact with healthcare and, consequently,
contribute to high costs for healthcare systems.
Thus, based on the assumption that there are low levels of health
literacy among the population of the municipality of Leiria, it was
decided to create a cohort study aimed at validating or refuting this
assumption. A cohort study is a type of study that follows, monitors
and analyses a subject over time ((Hammoudeh et al., 2016; Hulley et
al., 2007). This study would follow the population over time to assess
whether the actions taken (e.g. information campaigns on healthy
behaviours and metabolic diseases) have an impact on the overall
health of the population. The first phase of the cohort study includes
the presentation and publicising of the study itself to the population, followed by a door-to-door survey carried out by interviewers. This
is the phase to which this project will contribute.
This project is based on applying design methodologies and tools to
develop and implement the study. Informal interviews (Kumar, 2013;
Martin & Hanington, 2012) will be conducted with the cohort study
team, a group of cohort study experts and a sample of the population.
The aim of these interviews is to understand the challenges of the
study, strategies for resolving them and to understand the factors
that contribute to participation in the study. The methodology of
defining the user group (Kumar, 2013; Martin & Hanington, 2012;
Petermans & Cain, n.d.) will also be applied, conducted to understand
the different points of view of the participants, then allowing the
creation of personas (B. Ferreira, Conte, et al., 2015; B. M. Ferreira et
al., 2016; Ku & Lupton, 2020; Miaskiewicz & Kozar, 2011) consisting of
archetypes of the door-to-door survey interviewers, providing a
more accurate selection process. Workshops (IDEO, 2015) will also be
held, which will serve as a testing ground for the previously developed
processes.
Given that this is an ongoing study, the project's own development
will define its needs. Due to the high drop-out rates in similar studies,
it is hoped that the design intervention in this study can reverse this
trend, bridging the gap between what is expected by researchers and
the perception of the study population. The ultimate goal is to create
a process that can be replicated in other similar studies.
Description
Disclaimer
The author would like to declare that this master’s dissertation
constitutes an integral part of a Cohort Study taking place in the
county of Leiria that involves CML, ciTechCare, ACES Pinhal Litoral,
and LIDA.
The author informs that there are multiple papers published and
presented in conferences regarding the work accomplished on this
project.
- Poster published in RUN-EU General Assembly (conference 3rd
and 4th Nov 2021 - General Assembly, TUS, Ireland) - “Service
Design for stakeholder capacitation in health literacy, in the county
of Leiria”
Authors: Netto-Rocha, C., Marques, D.
- Paper (in press) and presentation in EhSemi 2022 and students’
seminar on ehealth and Wellbeing (conference 3rd Feb 2022 –
University of Aveiro) - "Design Approaches: Health Literacy
capacitation in the County of Leiria"
Authors: Marques, D., Netto-Rocha, C.
- Paper published and presentation in Conference on Applied
Human Factors and Ergonomics (AHFE 2022) (conference 24th to
28th Jul 2022 - New York) - "Cohort Study Good Practices: Design
Communication and Capacitation Processes"
Authors: Netto-Rocha, C., Marques, D., Ferreira, E., Penedos-
Santiago, E., Santos, E., Dias, S.
- Paper published and presentation in ECADE The European
Conference on Arts, Design & Education (conference 7th to 10th Jul 2022 – University of Porto) - "The role of Design in Health
Observational Studies”
Authors: Netto-Rocha, C., Marques, Daniela.
- Paper published as preprint - "Design Communication Processes
in the LISA Cohort Study"
Authors: Netto-Rocha, C., Marques, D.
- Poster published in XL Reunión Anual de la Sociedad Espanola de
Epidemiologia, XVII Congresso da Associação Portugesa de
Epidemiologia (conference 30th Aug to 2nd Sep 2022, San Sebastian)
– “LISA ESTUDO DE COORTE DA LITERACIA EM SAÚDE”
Authors: Dias, S., Santos, E., Alves, B., Gabriel, T., Netto-Rocha, C.,
Marques, D., Passadouro, R.
- Conference abstract SciComPt 2024 – “How (not) to ruin a study:
Designing Cohort Study Guidelines”
Authors: Marques, Daniela., Netto-Rocha, Constança.
- Poster published in ESAD.CR’s Year Exhibition "Vir a Lume"
(2023) – “O Papel dos Designers em Estudos Observacionais”
Authors: Netto-Rocha, Constança., Marques, Daniela.
- Poster published in "eu na vida de todos os dias" - ESAD.CR
Exhibition of the Year 2022 – “Bridging design and health:
Communication and capacitation processes in a cohort study.”
Authors: Netto-Rocha, Constança., Maximiano Ferreira, Elga., Soares
dos Santos, Estêvão. The author notes that due to protection of data and personal
information of the interviewees, the performed interviews will not
be attached to this document.
Keywords
Cohort study Multidisciplinary Team Service Design Participative Design Web Design Interviews User Group Definition Personas