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Participatory Co-design: Approaches to Enable People Living with Challenging Health Conditions to Participate in Design Research

2021-05-30Capítulo de livro Acesso aberto
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datacite.subject.fosCiências Sociais::Outras Ciências Sociais
datacite.subject.fosCiências Sociais::Ciências da Comunicação
datacite.subject.fosCiências Sociais::Economia e Gestão
datacite.subject.sdg03:Saúde de Qualidade
datacite.subject.sdg12:Produção e Consumo Sustentáveis
datacite.subject.sdg13:Ação Climática
dc.contributor.authorNeves, S.
dc.contributor.authorMacdonald, A.
dc.contributor.authorPoole, M.
dc.contributor.authorDening, K. Harrison
dc.date.accessioned2026-04-17T11:27:36Z
dc.date.available2026-04-17T11:27:36Z
dc.date.issued2021-05-30
dc.descriptionEISBN - 9783030758677
dc.descriptionLink para o documento: https://www.researchgate.net/publication/352511755_Participatory_Co-design_Approaches_to_Enable_People_Living_with_Challenging_Health_Conditions_to_Participate_in_Design_Research
dc.description.abstractPeople are living longer and are affected by challenging chronic, lifestyle- and age-related conditions such as dementia and stroke. The increasing number of people living with challenging health conditions highlights social concerns and their implications for the successful delivery of healthcare services. Research on improving dementia care [Alzheimer’s Disease International (2016) World Alzheimer Report 2016: Improving healthcare for people living with dementia: coverage, quality and costs now and in the future. Alzheimer’s Disease International, London] shows a need to involve people living with dementia, their families, and health and social care professionals when designing improvements to their healthcare services. In addition, involving patients recovering from stroke in discussions about rehabilitation services has been considered important to enable making decisions that better address their health care needs [Kristensen HK, Tistad M, Koch LV, Ytterberg C (2016) The importance of patient involvement in stroke rehabilitation. PLOS One 11(6). 10.1371/journal.pone.0157149]. This paper presents two case studies of a participatory co-design approach used to engage people; (a) living with dementia, and (b) recovering from stroke in design research, where co-design-led methods were used to enable participation. The paper describes the importance of each of the roles of—and relationships between—individuals involved in the participatory co-design research process and how people living with challenging health conditions are enabled to participate in a form of three-way relationship. It discusses lessons learned, reflections and recommendations for a new collaborative model for people living with challenging health conditions engagement to enable a more equal and reciprocal partnership for participation in design research into healthcare improvements.eng
dc.description.sponsorshipCase study 1 was funded by the FCT – Fundação para a Ciência e a Tecnologia (QREN, POPH e Fundo Social Europeu) [SFRH/BD/64562/2009]. Case study 2 presents independent research funded by the National Institute for Health Research (NIHR) under its Programme Grants for Applied Research (Grant Reference Number RP-PG-0611-20005), led by Professor Dame Louise Robinson, Newcastle University. The views expressed in this publication are those of the authors and not necessarily those of the NIHR or the Department of Health and Social Care. We are very grateful to all participants for their time and enthusiasm. The articlewas kindly supported by Fundação para a Ciência e a Tecnologia (FCT) (UIDB/05468/2020), Laboratório de Investigação em Design e Artes (LIDA) and Politécnico de Leiria.
dc.identifier.citationNeves, S., Macdonald, A., Poole, M., Harrison Dening, K. (2021). Participatory Co-design: Approaches to Enable People Living with Challenging Health Conditions to Participate in Design Research. In: Martins, N., Brandão, D., Moreira da Silva, F. (eds) Perspectives on Design and Digital Communication II. Springer Series in Design and Innovation , vol 14. Springer, Cham. https://doi.org/10.1007/978-3-030-75867-7_13.
dc.identifier.doi10.1007/978-3-030-75867-7_13
dc.identifier.eissn2661-8192
dc.identifier.isbn9783030758660
dc.identifier.isbn9783030758677
dc.identifier.issn2661-8184
dc.identifier.urihttp://hdl.handle.net/10400.8/16139
dc.language.isoeng
dc.peerreviewedyes
dc.publisherSpringer Nature
dc.relationENJOY YOUR MEAL: DESIGN TOOLS AND STRATEGIES TO MAINTAIN NUTRITIONAL INTAKE, INCREASE INDEPENDENCE AND IMPROVE WELL-BEING POST-STROKE
dc.relationArts and Design Research Lab
dc.relation.hasversionhttps://link.springer.com/chapter/10.1007/978-3-030-75867-7_13
dc.relation.ispartofSpringer Series in Design and Innovation
dc.relation.ispartofPerspectives on Design and Digital Communication II
dc.rights.uriN/A
dc.subjectParticipatory co-design research
dc.subjectPeople living with challenging health conditions’ engagement
dc.subjectCo-design-led methods
dc.titleParticipatory Co-design: Approaches to Enable People Living with Challenging Health Conditions to Participate in Design Researcheng
dc.typebook part
dspace.entity.typePublication
oaire.awardNumberSFRH/BD/64562/2009
oaire.awardNumberUIDB/05468/2020
oaire.awardTitleENJOY YOUR MEAL: DESIGN TOOLS AND STRATEGIES TO MAINTAIN NUTRITIONAL INTAKE, INCREASE INDEPENDENCE AND IMPROVE WELL-BEING POST-STROKE
oaire.awardTitleArts and Design Research Lab
oaire.awardURIhttp://hdl.handle.net/10400.8/16138
oaire.awardURIinfo:eu-repo/grantAgreement/FCT/6817 - DCRRNI ID/UIDB%2F05468%2F2020/PT
oaire.citation.endPage216
oaire.citation.startPage193
oaire.citation.titleSpringer Series in Design and Innovation
oaire.fundingStream6817 - DCRRNI ID
oaire.versionhttp://purl.org/coar/version/c_970fb48d4fbd8a85
person.familyNameNeves
person.givenNameSandra
person.identifier.ciencia-id5B11-280A-E9BD
person.identifier.orcid0000-0002-1679-6002
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.nameFundação para a Ciência e a Tecnologia
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People are living longer and are affected by challenging chronic, lifestyle- and age-related conditions such as dementia and stroke. The increasing number of people living with challenging health conditions highlights social concerns and their implications for the successful delivery of healthcare services. Research on improving dementia care [Alzheimer’s Disease International (2016) World Alzheimer Report 2016: Improving healthcare for people living with dementia: coverage, quality and costs now and in the future. Alzheimer’s Disease International, London] shows a need to involve people living with dementia, their families, and health and social care professionals when designing improvements to their healthcare services. In addition, involving patients recovering from stroke in discussions about rehabilitation services has been considered important to enable making decisions that better address their health care needs [Kristensen HK, Tistad M, Koch LV, Ytterberg C (2016) The importance of patient involvement in stroke rehabilitation. PLOS One 11(6). 10.1371/journal.pone.0157149]. This paper presents two case studies of a participatory co-design approach used to engage people; (a) living with dementia, and (b) recovering from stroke in design research, where co-design-led methods were used to enable participation. The paper describes the importance of each of the roles of—and relationships between—individuals involved in the participatory co-design research process and how people living with challenging health conditions are enabled to participate in a form of three-way relationship. It discusses lessons learned, reflections and recommendations for a new collaborative model for people living with challenging health conditions engagement to enable a more equal and reciprocal partnership for participation in design research into healthcare improvements.
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