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Quality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reports

2023-06-14Artigo científico Acesso aberto
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dc.contributor.authorJacinto, Miguel
dc.contributor.authorRodrigues, Filipe
dc.contributor.authorMonteiro, Diogo
dc.contributor.authorAntunes, Raul
dc.contributor.authorFerreira, José Pedro
dc.contributor.authorMatos, Rui
dc.contributor.authorCampos, Maria João
dc.date.accessioned2023-06-15T13:06:14Z
dc.date.available2023-06-15T13:06:14Z
dc.date.issued2023-06-14
dc.description.abstractAssessing quality of life (QoL) is important to provide personalized and individualized support plans with the purpose of improving personal outcomes. Based on the conceptual model of QoL, the aim of this study was to assess the congruence between the perceptions of institutionalized individuals with intellectual and developmental disabilities (IDD) and the perception of a third party, regarding QoL. Forty-two individuals participated in this study, including twenty-one with mild to severe IDD and their family members/caregiver/reference technician, who responded to the Personal Outcomes Scale (Portuguese version). Significant differences (p < 0.05) were found between reports in the personal development (t = −2.26; p = 0.024), emotional well-being (t = −2.263; p = 0.024), physical well-being (t = −2.491; p = 0.013) and total QoL (t = −2.331; p = 0.02). The results further show that most third-party reports tend to undervalue the QoL of the individual with IDD, and that there is no congruence in any of the QoL domains. The inclusion of self-reports in the QoL assessment is important. In addition to the assessment of third-party reports, the process of making decisions appropriate to the context and individual characteristics is equally important. On the other hand, the inclusion of third-party reports is an opportunity to promote communication among all stakeholders, recognize and discuss differences, and promote QoL, not only of individuals with IDD, but also of families.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationJacinto, M.; Rodrigues, F.; Monteiro, D.; Antunes, R.; Ferreira, J.P.; Matos, R.; Campos, M.J. Quality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reports. Healthcare 2023, 11, 1748. https://doi.org/10.3390/ healthcare11121748pt_PT
dc.identifier.doi10.3390/healthcare11121748pt_PT
dc.identifier.issn2227-9032
dc.identifier.urihttp://hdl.handle.net/10400.8/8601
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherMDPIpt_PT
dc.relation.publisherversionhttps://www.mdpi.com/2227-9032/11/12/1748pt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectCaregivers/family memberspt_PT
dc.subjectIntellectual disabilitypt_PT
dc.subjectEscala Pessoal de Resultadospt_PT
dc.subjectPersonal Outcomes Scalept_PT
dc.subjectSelf-reportspt_PT
dc.titleQuality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reportspt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.conferencePlaceSuiçapt_PT
oaire.citation.issue12pt_PT
oaire.citation.startPage1748pt_PT
oaire.citation.titleHealthcarept_PT
oaire.citation.volume11pt_PT
person.familyNameSusano Jacinto
person.familyNameRodrigues
person.familyNameMonteiro
person.familyNameAntunes
person.familyNameMatos
person.givenNameMiguel Ângelo
person.givenNameFilipe
person.givenNameDiogo
person.givenNameRaul
person.givenNameRui
person.identifier613329
person.identifierF-1202-2015
person.identifier.ciencia-id0816-8EAF-D4D1
person.identifier.ciencia-id9B18-7FE1-74AF
person.identifier.ciencia-idED1F-6228-E26F
person.identifier.ciencia-id8B16-73A3-A66E
person.identifier.ciencia-idE91C-D6C7-62A5
person.identifier.orcid0000-0002-1727-3537
person.identifier.orcid0000-0003-1327-8872
person.identifier.orcid0000-0002-7179-6814
person.identifier.orcid0000-0002-5485-9430
person.identifier.orcid0000-0002-2034-0585
person.identifier.ridA-8152-2019
person.identifier.scopus-author-id57206270107
person.identifier.scopus-author-id56437945500
person.identifier.scopus-author-id57194044687
person.identifier.scopus-author-id55315503400
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublicationab5535bd-950a-4507-968c-2fab33b83223
relation.isAuthorOfPublication661e2126-79f7-445a-bda0-eb4c9d0bb0e2
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relation.isAuthorOfPublication.latestForDiscovery79dcae83-d54a-4acc-a9a1-8268c7776ab9

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