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Assessing caregiving experience in COPD: content validity of the Zarit Burden Interview

2018Conference object Open access
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dc.contributor.authorCruz, Joana
dc.contributor.authorMarques, Alda
dc.contributor.authorSouto-Miranda, Sara
dc.contributor.authorGoldstein, Roger
dc.contributor.authorBrooks, Dina
dc.date.accessioned2019-07-23T15:23:45Z
dc.date.available2019-07-23T15:23:45Z
dc.date.issued2018
dc.description.abstractCaring for a relative with COPD influences multiple dimensions of carers' lives. Several instruments have been used to assess the caregiving experience in COPD,1 e.g. the Zarit Burden Interview (ZBI). This instrument was originally developed for use in carers of people with dementia, however, its applicability in COPD has not been tested. This study explored the content validity of the ZBI in carers of patients with COPD. Ten carers (68.2±6.9yrs, all female) of patients with COPD (74.7±5.3yrs, all male, FEV1=49.2±19.0%pred) participated in cognitive debriefing interviews. They were asked to complete the ZBI and verbalise their thinking process to assess the adequacy of its content and instructions. Interviews were recorded and transcribed for further analysis using the qualitative data analysis software (WebQDA). Responses to the ZBI were also analysed to explore floor/ceiling effects. From the 22 items of the ZBI, 6 items were relevant for all carers and 11 items were not relevant for at least one participant. Five of these 11 items were not relevant for ≥40% of the sample and were related to stress for providing care, embarrassment about patient’s behaviour and impacts on social/leisure time. The remaining 5 items were not consensual. Overall, the ZBI was well-understood although 8 items were less clear for some carers. They suggested: improving questions (n=1) and scoring (n=5); eliminating item 4 (n=2); including 2 questions about the caregiving context (n=1). Responses were mostly distributed in the option ‘Never/Not at all’. The ZBI in its current form should not be used to assess carer experience among those caring for patients with COPD. 1Cruz, J et al. Resp Med 2017;128:13-27pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationCruz J, Marques A, Miranda S, Goldstein R, Brooks D. (2018) Assessing caregiving experience in COPD: content validity of the Zarit Burden Interview. European Respiratory Journal; 52: Suppl. 62. https://doi.org/10.1183/13993003.congress-2018.PA1495pt_PT
dc.identifier.doi10.1183/13993003.congress-2018.PA1495pt_PT
dc.identifier.urihttp://hdl.handle.net/10400.8/4019
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.relation.publisherversionhttps://erj.ersjournals.com/content/52/suppl_62/PA1495pt_PT
dc.subjectChronic obstructive pulmonary diseasept_PT
dc.subjectCaregiverpt_PT
dc.subjectCarerpt_PT
dc.subjectDistresspt_PT
dc.titleAssessing caregiving experience in COPD: content validity of the Zarit Burden Interviewpt_PT
dc.typeconference object
dspace.entity.typePublication
oaire.citation.conferencePlaceParispt_PT
oaire.citation.startPagePA1495pt_PT
oaire.citation.titleEuropean Respiratory Journalpt_PT
oaire.citation.volume52pt_PT
person.familyNameCruz
person.familyNameMarques
person.familyNamePalos Souto de Miranda
person.familyNameGoldstein
person.familyNameBrooks
person.givenNameJoana
person.givenNameAlda
person.givenNameSara
person.givenNameRoger
person.givenNameDina
person.identifier.ciencia-idE213-7D20-5C3C
person.identifier.ciencia-idDE15-EFBA-4856
person.identifier.ciencia-idD21D-0290-5C3A
person.identifier.orcid0000-0002-4911-4469
person.identifier.orcid0000-0003-4980-6200
person.identifier.orcid0000-0002-5984-4844
person.identifier.orcid0000-0002-4236-043X
person.identifier.orcid0000-0001-6080-5052
person.identifier.ridK-7030-2013
person.identifier.scopus-author-id36715922000
rcaap.rightsopenAccesspt_PT
rcaap.typeconferenceObjectpt_PT
relation.isAuthorOfPublication33428074-748a-4751-b2f7-9f24247715fd
relation.isAuthorOfPublication2b4618ae-9c47-4033-94ea-24c9793d73e7
relation.isAuthorOfPublicatione825977d-219b-4cc5-8bdb-8a37d3677a3b
relation.isAuthorOfPublication1f4a20c5-28b3-4745-94c2-68734a0471c1
relation.isAuthorOfPublicationcfc689b6-e9c3-419b-b270-d93652be4c5f
relation.isAuthorOfPublication.latestForDiscovery33428074-748a-4751-b2f7-9f24247715fd

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