Percorrer por autor "Paiano, Marcelle"
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- The experiences of mothers in caring for children with complex health conditions during hospitalization in Brazil: a grounded theory analysisPublication . Harmuch, Camila; Laranjeira, Carlos; Lima, Ana Luísa Serrano; Higarashi, Ieda Harumi; Jaques, André Estevam; Paiano, MarcellePurpose Children with Complex Health Conditions (CCHC) require prolonged, specialized, and multidisciplinary care, often demanding prolonged hospitalizations. In this context, mothers generally assume the role of primary caregivers, facing emotional, physical and social overload. However, their experiences during hospitalization remain little explored. This study aimed to understand the experiences and needs of mothers caring for CCHC during hospitalization. Design and methods This qualitative study used an inductive approach based on the Straussian Grounded Theory principles. Data collection took place between September 2024 and March 2025, through individual, in-person, semi-structured interviews, conducted with mothers of CCHC admitted to a Brazilian university hospital. Data analysis followed the constant comparison method, occurring simultaneously with collection, enabling the construction of categories and conceptual refinement. Results Sixteen mothers aged between 23 and 46 years (34.75 ± 7.55) were recruited. Data analysis generated the core category “Care experiences: balancing between light and shadow” around which three categories are anchored: 1) Dealing with the complexity of the disease and hospitalization; 2) Barriers to care dynamics during hospitalization; and 3) Enablers of care for children with complex health conditions. Conclusions The analysis of maternal experiences highlights the urgent need for care practices based on family-centered care models that recognize mothers as protagonists in the care process. Practice implications Findings support the implementation of institutional protocols that ensure effective communication, continuous support and qualification of professionals to promote a welcoming, safe and humanized environment, reducing the emotional and structural vulnerabilities faced by mothers who care for CCHC.
- Meanings and Experiences of Prisoners and Family Members Affected by the COVID-19 Pandemic in a Brazilian Prison Unit: A Grounded Theory AnalysisPublication . Baccon, Wanessa Cristina; Salci, Maria Aparecida; Carreira, Lígia; Gallo, Adriana Martins; Marques, Francielle Renata Danielli Martins; Paiano, Marcelle; Baldissera, Vanessa Denardi Antoniassi; LARANJEIRA, C.Worldwide, the COVID-19 pandemic represented a health emergency for prisons. This study sought to understand the meanings and experiences through the narratives of prisoners and family members affected by the COVID-19 pandemic in the context of a maximum-security state penitentiary complex in southern Brazil. For this purpose, a qualitative study was developed based on the methodological framework of constructivist grounded theory. Data were collected between February and August 2022 through individual in-depth interviews and field notes. The sample consisted of 41 participants: 28 male prisoners, and 13 family members. Guided by the Charmaz method of grounded theory analysis, the study afforded the core category “Feeling trapped in prison during the COVID-19 pandemic” with three interrelated phases: “Triggering”, “Escalating”, and “Readjustment”. The “Triggering” phase refers to COVID-19-related elements or events that triggered certain reactions, processes, or changes in prison. During the “Escalating” phase, participants became overwhelmed by the suffering caused by incarceration and the pandemic crisis. The “Readjustment” phase involved adapting, reorienting, or reformulating previous approaches or strategies for dealing with a specific situation. Prisons faced complex challenges during the pandemic and were forced to prioritize protecting public health. However, the measures adopted must be carefully evaluated, ensuring their needs and that they are based on scientific evidence. The punitive approach can undermine inmate trust in prison authorities, making it difficult to report symptoms and adhere to preventive measures. © 2023 by the authors.
- Prevalence and Predictors of Long Covid in a Cohort of Brazilian Adults 12 Months After Acute Infection: A Cross‐Sectional StudyPublication . Covre, Eduardo Rocha; Laranjeira, Carlos; Carreira, Lígia; Höring, Carla Franciele; Góes, Herbert Leopoldo de Freitas; Baldissera, Vanessa Denardi Antoniassi; Marques, Priscila Garcia; Meireles, Viviane Camboin; Tostes, Maria Fernanda do Prado; Oliveira, Rosana Rosseto de; Paiano, Marcelle; Ageno, Rosella Santoro; Moroskoski, Márcia; Alcaraz, Jesús Puente; Vissoci, João Nickenig; Facchini, Luiz Augusto; Salci, Maria; Chew-Graham, CarolynIntroduction: Since the onset of the pandemic in early 2020, various reports have emerged regarding persistent symptoms associated with Covid‐19. Nevertheless, there is insufficient data on the persistence of symptoms over time. This study sought to estimate the prevalence of persistent symptoms 12 months after Covid‐19 infection and identify predictors of long Covid in adults living in the State of Paraná, southern Brazil, according to the level of severity of Covid‐19 infection. Method: An observational and cross‐sectional survey was conducted with Brazilian adults diagnosed with Covid‐19, as assessed from data available in two official Covid‐19 notification databases in Brazil, using telephone interviews. Descriptive statistics, tests of associations and simple and multiple binary logistic regression analysis were used to identify predictors of long Covid. Results: In total, 1033 adults participated in the study. The overall prevalence of long Covid was 60.3% (n = 623). Prevalence was higher in women (67.7%), people aged between 50 and 59 years (65.8%) and in individuals who received treatment in an Intensive Care Unit (ICU) during the acute phase of Covid‐19 infection (74.4%, n = 241). The risk factors associated with a greater chance of developing long Covid were: female (OR 2.38; 95% CI 1.55; 3.66), living in the Brazilian northwest health macro‐region (OR 2.20; 95% CI 1.21; 4.00), presenting multimorbidity (OR 1.86; 95% CI 1.06; 3.28), having an average of six symptoms in the acute phase of Covid‐19 (OR 1.22; 95% CI 1.17; 1.28) and having received treatment in an ICU (OR 4.86; 95% CI 2.83; 8.35) and inpatient ward (OR 2.45; 95% CI 1.47; 4.09). Conclusions: The results highlight the high prevalence of long Covid and support the formulation of health policies capable of minimising the consequences on the population, on the services offered by professionals and on health systems. Patient or Public Contribution: The study topic's importance was based on the patients' experiences in the author's previous research and the need to develop patient‐centred care.